News from South America and Mexico

From Regional Patient Advocate Fernanda De Oliveira Martins

Since the start of 2025, I’ve worked with my MOs to update the Regional Medical Advisory Panel (RMAP) contacts in HAEi HUB, as well as checked preferences regarding the use of HAE TrackR and assessed the use of HAEi tools in my region. All these activities aim to improve the use of HAEi tools by MOs and to help them to be more effective in their daily work.

I’ve also been busy planning and preparing for the upcoming HAEi Member Organizations Growth & Impact Summit for Patient Leads from the South America and Mexico region. This HAEi MOs Growth & Impact Summit will take place at the end of May in São Paulo, Brazil. To support fruitful discussions and exchange of ideas, we are working on 2 region surveys; one for MOs and the other for people with HAE or caregivers (if the person with HAE is under 18).

The HAEi MOs Growth & Impact Summit is designed to facilitate RPA and MO close working to identify specific challenges, offer tailored support, and co-create a tailored practical advocacy plan for each region country. Working with MOs to implement their individual plans and through full use of the HAEi toolbox, we can strengthen each organization, ultimately equipping MOs with skills for effective collaboration with pharmaceutical companies and governments on the registration and reimbursement of modern HAE treatments. HAEi and RPAs continually work to support and empower MOs to advocate more effectively for people with HAE and drive meaningful change within their communities.

I’m looking forward to meeting the MO leaders of my region there!