From HAE Panama

In February 2025, patients and members of the Panamanian Hereditary Angioedema Patient Association received the welcome news that we now have another drug registered in the country. In this case, the generic Icatibant.

In addition, some members of the patient association (photo 1) met with the representative of the drug’s pharmaceutical company. During this meeting, more details were learned about the drug.

On February 27, members of the board of directors and patients held a meeting at the Ministry of Health (MINSA) with the coordinator of the rare disease program and 2 other members of this program.

At this meeting, we had the valuable company of Mr. Javier Santana, our representative at HAEi. During the meeting, we learned about the status of the program and how it is working for HAE patients. Mr. Javier Santana was able to contribute ideas to improve drug procurement and benefit patients. We are incredibly grateful that he joined us at this important meeting.

At this moment, we are organizing activities for International HAE Day.