From Priyanka Meduthuri, HAE India

HAE India at 2025 HAEi Regional Conference APAC: Strengthening Our Community

The 2025 HAEi Regional Conference APAC in Manila, Philippines (March 7-9) was an inspiring and insightful event for the HAE India community. Five Indian patient families attended, gaining valuable knowledge on improving diagnosis, treatment access, and patient support.

Dr. Ankur highlighted how family screening and proper diagnosis can help identify more HAE patients in India. HAE India’s work was showcased through a recorded introduction by President Pravalika Meduthuri, strengthening our presence on the global platform.

Our youngsters, Akanksha and Shashwath, had an engaging experience in the youth program, with Akanksha also participating in the HAEi LEAP program. We connected with advocates from Asia and Australia, learning best practices to implement in India.

A key highlight was discussions with pharmaceutical companies, providing insights into the future of HAE treatment and access.

This conference reinforced our commitment to raising awareness, improving access, and supporting the Indian HAE community. We return with inspiration and a strong action plan for the future.