Michal Rutkowski, Director, Regional Patient Advocate Program

HAEi’s in-region advocates are ready to support transformative HAE community growth in 2025

As HAEi’s Director, Regional Patient Advocate (RPA) Program, my recent focus has been working with our RPAs on their plans for 2025. With more ‘boots on the ground’ than ever before, we set an ambitious course for 2025 to expand awareness, strengthen patient engagement, and improve access to essential resources on a global scale.

Global patient community growth remains central to the RPA Program strategy for 2025. A priority is increasing the adoption of critical educational tools like HAEi Advocacy Academy and HAEi Connect, ensuring they reach Member Countries where awareness and utilization remain low. Digital engagement supports a more connected, informed, and responsive community. The translation of essential educational materials such as Understanding HAE and Women with HAE, alongside the expansion of regional hae day :-) initiatives will further elevate awareness and engagement.

Addressing the ongoing challenge of treatment access remains a key focus of RPAs. The team will deliver targeted awareness projects, virtual local patient workshops, and meetings, designed to equip patient leaders with the skills and resources needed to advocate for change. RPAs will support HAEi Member Countries to increase collaboration between patient groups and government administrations. The objective is clear: to strengthen local networks, drive policy changes, and ensure access to modern HAE treatments.

Regional-level engagement will be instrumental in delivering positive change from HAE advocacy. RPA support and participation in key conferences this year, such as the recently held 2025 HAEi Regional Conference APAC and the upcoming 2025 HAEi Regional Conference EMEA, keep critical issues front and center. The “MOs Growth & Impact Summit” for Patient Leaders from South America and Mexico in May will serve as a key forum for collaboration and knowledge-sharing, reinforcing the community’s commitment to patient empowerment.

By leveraging resources, expanding partnerships, and advocating for improved healthcare policies, our RPAs will work hand in hand with MOs and the wider HAE community to bring lasting and measurable impact. The months ahead will be defined by strategic initiatives that deliver meaningful results for HAE patients worldwide.

I’m excited for the opportunities for significant progress that 2025 presents – stay tuned!

Michal Rutkowski
Director, Regional Patient Advocate Program