From Zoe Steiner, Operations Coordinator, HAE Australasia

HAE Australasia Update: A Busy Start to 2025
It’s been an action-packed start to the year for HAE Australasia, with significant events and initiatives taking shape across the region. We’ve been hard at work supporting and advocating for the HAE community, ensuring that our members across Australia and New Zealand are well represented and supported.

One of the major highlights of the year so far was the 2025 HAEi Regional Conference APAC, which took place on the 8th and 9th of March in Manila. We were thrilled to see a strong representation from Australia and New Zealand, with many of our members featured on stage, sharing their own patient stories and taking part in insightful panel sessions. It was inspiring to witness the depth of knowledge and passion for HAE shared by all involved. The Youngsters Track was also a standout, with our young people having a fantastic time. The HAEi team did a remarkable job organizing the event and ensuring everything ran smoothly, and we extend our heartfelt thanks to them for their efforts in making it such a memorable experience.

Looking ahead, we are excited to announce our HAE Australasia 2025 Patient & Carers Meeting New Zealand, which will take place on the 3rd of May in Auckland. Invitations to register have already been sent out, and we’re in the final stages of fine-tuning the agenda. This meeting promises to be an essential event for our New Zealand HAE community, offering valuable guidance and a chance to discuss key issues affecting our members. One of the primary topics will be how we can strengthen our advocacy efforts in New Zealand, pushing forward our mission to ensure that prophylactic care becomes a standard option for all HAE patients. We expect this event to draw a strong turnout and provide a great opportunity for the New Zealand HAE family to come together and collaborate.

As always, we’re deeply committed to supporting our HAE community, and we look forward to continuing our work to improve the lives of patients across Australia and New Zealand in 2025 and beyond. Stay tuned for more updates and exciting developments!