Ganesh’s story

You might remember Ganesh Dahal from the last 2024 edition of Global Perspectives when he took us through the development of HAE Nepal.

From the stage, Ganesh told his story to the assembled patients and caregivers in Manila.

He told the audience that he was born in Kathmandu in 1995, and not long after his birth, the family lost his father to undiagnosed HAE. He said it was a terrible blow and the turning point of his life. Ganesh had his first attack at age 12 and only received an HAE diagnosis 10 years later. He paid tribute to his resilient and wonderful mother and his beautiful wife, Alisha, who were in the audience listening.

Despite the challenges he experienced with HAE, he became the first person in Nepal licensed to practice accountancy in the US. He shares this as he believes that it is possible to empower people and, as he says, swell with purpose.

He concluded by telling the audience that he helped start HAE Nepal as an opportunity to serve people and improve advocacy in his country. He also expressed his gratitude to Fanny and Fiona from HAEi and physicians Dr Dharmagat and Dr Sudeep from Nepal for their support in creating HAE Nepal.

You can read our in-depth feature on HAE in Nepal, from both the patient and physician perspective, here.